Covid-19 Coronavirus

ME/CFS & Long COVID Service

Calling People with ME/CFS or Long COVID to take part in a research study

We are looking for adults with myalgic encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS) or Long COVID (LC) to take part in a study to develop a clinical assessment toolkit.

We are working with people with ME/CFS/LC and ME/CFS services to co-produce a series of measurement tools to help identify, understand and quantify people with ME/CFS/LC’s symptoms and disabilities, support goal setting and treatment planning, and monitor changes. Collectively these form the clinical assessment toolkit.   

The 3rd measurement tool assesses activity levels and is called the ME Activity Questionnaire (MEAQ). We would like people with ME/CFS/LC to complete the MEAQ online to check that it captures the issues that are important to people with ME/CFS/LC, is easy to complete, and produces good quality information/ data. We will use the information from this survey to revise this draft tool as needed to produce the final version.

The MEAQ takes 20-30 minutes to complete, but it can be done in ‘chunks’ to aid pacing. It is fine for someone to help you.

If you are interested, further details and the link to complete the survey are below. 

Two weeks after completing the survey, we will send a link to repeat it. This is so we can check how people’s symptoms fluctuate over the short term and whether the MEAQ picks them up.

If you have any questions, don’t hesitate to contact the chief investigator, Prof Sarah Tyson at

ME/CFS and Long COVID Service

Ward 20

Noble's Hospital



Isle of Man


Telephone:+44 1624 650688

Email:Send Email

Welcome to the ME/CFS and Long COVID Service. The team is multidisciplinary and includes a GP with special interest, Psychologist, Occupational Therapist, Physiotherapist, Therapy Technical Instructor and an admin officer.

We provide a holistic assessment and client centred individual therapy approach to managing the symptoms of ME/CFS and Long COVID where other medical causes have been ruled out.

Referrals to the service are via your GP.

Please see this video developed with ME Support IOM for what to expect from the service.

Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS)

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