Where can I find out more about Parkinson's disease?
Parkinson's UK is a national support and fundraising charity. The website is packed with information about Parkinson's. You will find out all the latest news, publications and research updates, as well as contact information for support groups in your area.
Join the online discussion forum to share your experiences of living with Parkinson's and chat to other people in the same situation. Everyone affected by the condition is welcome to join, including families and carers.
Is there a health professional who has specific responsibility for Parkinson's disease?
Sue Lawley is the Parkinson's Nurse Specialist. Sue works part time (30 hours per week).
Is there a local support group?
Yes, the Parkinson's Disease Society, Isle of Man, holds a drop in day and meeting on the fourth Tuesday of each month at The Palace Hotel, Douglas from 10am to 3pm.
More information and further enquiries can be made to:
+44 1624 897504
Is there a Parkinson's UK Information and Support Worker for the Isle of Man?
0844 225 3748 (calls charged at local rate)
Beverley Jackson is our local information and support worker, who can provide confidential one-to-one information and signposting, including:
- information about, and links to, local services that can help you
- information about benefits and help with the application process
- a supporting voice if you need to complain or are having problems getting your needs assessed or met
- emotional support for you and your family
Is there a helpline I could call?
A confidential helpline - Monday to Friday 9am to 8pm, Saturday 10am to 2pm, is available from the Parkinson's UK charity. There are expert nurses and helpline staff available to provide impartial information about all aspects of Parkinson's, including taking medication, claiming benefits and much more. And you can contact them if you want to talk to someone about living with the condition.
Anyone affected by Parkinson's can call or email the helpline for support and information. The service is confidential and calls are free from landlines and most mobile networks. An interpreting service is available for anyone who doesn't speak English.
I am a health professional and would like to learn more about Parkinson's. Where can I get more information?
The Parkinson's UK website provides a vast amount of information for professionals wishing to find out more about the condition, including information about a range of courses and seminars. There is also a professionals network, information on key policies in Parkinson's, guidelines for health and social care practitioners and highlighted areas of good practice to inform service development.
Parkinson's Nurse Specialist
The Parkinson's Nurse Specialist provides specialist nursing to people with Parkinson's disease. Patients are seen in both primary and secondary care according to their individual requirements. The service provides information, education and support to both the clients and carers at any stage of their illness, and works to ensure that they receive not only optimum care but also improved quality of life. The Co-ordination and initiation of early referrals to the multi-disciplinary team generates the link with other professionals who can make a positive impact on patients' lives and the lives of their carers.